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My Daughters Kidney Disease


You may have noticed that I have not been as active this year as I usually am on the blog and there is one pretty big reason. My daughter is sick with Chronic Kidney Disease and I think I am finally ready to write about it, come out and talk about it. This is the first time that I am writing about my daughter and her Kidney disease and what is going on within our family as we struggle and work through this.

Early last year my daughter Taylor, who is now twelve, went for a normal annual physical and her blood testing came back with higher than normal levels of Creatinine. This was not too much of a worry to our family doctor as she was just slightly out of range but he still sent my wife and daughter to a pediatrician and some more testing. While time went by and we waited for the appointment a few weeks later I did a little Googling around and found that this could be a sign of some kind of kidney issue but it was really vague to us at the time.

My wife and daughter went to the pediatrician a couple of times and then got sent to a specialist and then finally to our children’s hospital for more testing and everyone was very indecisive about what was happening.

Getting the Diagnosis

Finally at one meeting last November that just Taylor and my wife Michelle went and had more testing and the doctor let them know that Taylor has Nephronophthisis and would have her kidneys fail and need to have a kidney transplant. Not good news and I still feel bad that I was not at the doctors appointment.

Nephronophthisis is a genetic condition so Michelle and I are both carriers of a bad gene and because of this there was a 1 in 4 chance that either of our kids would inherit the two bad gene halves. Taylor did, we think Jaiden or son did not. This form of kidney disease affects kids between the ages of 8 and 14 and the odds are really low, about 2 kids out of 100,000 would get this, and of course you don’t catch it, you are born with it and it just shows as you get older.

How Our Family is Dealing with Kidney Disease

Happy TaylorSo since last November we have been learning a lot and had a lot of hard times with Taylor’s kidney disease. Taylor is a bit scared of course like any 12 year old should be. My wife Michelle is always looking far ahead and nervous about what the future holds, and I am day to day. Every day that Taylor feels well I am happy and every day that she is feeling unwell I feel terrible for her.

So far since the Nephronophthisis diagnosis Taylor’s kidney function has dropped from about 45% to 28.6% and as we watch the kidney function drop we get more and more nervous but the doctors stay level headed and are keeping us informed on the next steps for us and Taylor and meeting with us on a monthly basis. Here in Calgary Alberta we have a Nepherology clinic at the Alberta Children’s Hospital and so each monthly meeting there we meet with a psychologist, a dietician, a pharmacist, and the kidney doctor. They are fantastic and I feel like we are in great hands.

So far we have not had to change Taylor’s diet at all (no sodium restriction), and she has to take a few vitamins and on Sunday nights she get the good fortune of having me give her an Eprex shot. Also Taylor has to drink a ton of water as her kidneys do not keep her water level where it needs to be and she dehydrates easily, so easily in fact that we have had to take her to hospital three times in the last few months for dehydration.

Next Step – Kidney Transplant

So now we are getting close to our next step. Taylor will need a new kidney sooner rather than later. As the kidney function drops Taylor’s kidneys will not clean blood, regulate vitamin D or calcium very well until finally none of this would happen and she would need to go on dialysis. So the first step was for my wife and I to get ready tested as transplant donors. We went for blood testing and the living donor clinic (independent or our doctor or us) have decided to start testing me to donate a kidney. I have a 24 hour heart rate monitor on right now as I type and then there will be a full day of testing in a few weeks to test me and see if I am a good match.

As for kidney transplant itself, a transplanted kidney will last for 10 to 15 years and then Taylor will be shopping for another one. The surgery seems to be common and the doctor that we spoke to earlier this week say that they do about 50 kidney transplants every year with only about 5 being done for kids. If all goes according to plan I will donate the kidney, Taylor will get the kidney put into her body and hooked up, and we will be out of the hospital within a few days. People live completely normal lives with just one kidney and the only suggestion that our transplant doctor gave me was to not eat protein powder because of the pressure it puts on the kidney. Diet and exercise should be the same.

So as you can imagine this as been a really trying time for our whole family. We are worried for Taylor and hoping that everything is done before she would have to go on dialysis but for now we are day to day with this thing struggling, praying, hoping, and just living through it.

I know that I may have missed a lot in this post, in fact I expect to write a few posts on the subject as we are becoming pretty well versed in kidney issues and health of kidneys. Fire away any questions that you want and Michelle and I will answer them for you.

My Daughters Kidney Disease, 5.0 out of 5 based on 1 rating

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Weight Loss Exercise

Pre-competition meals


Many people are wondering what to eat when getting ready for competition so I thought this would be a good article on pre-competition meals.

For forty-eight hours prior to competition the athlete’s workouts must be canceled or markedly curtailed. This allows his muscles a couple of days to recover from the persistent training he has been doing. It allows that little extra bit of spring and kick to creep into the muscles, ready to burst forth at the moment of challenge.

Carbs and Glycogen in pre-competition meals

Another reason for tapering off the training program during this period is that of allowing the liver specifically and the body generally to replete their glycogen (synonymous with carbohydrate and starch) reserves. An adequate supply of available carbohydrate is invaluable in endurance events, first to provide ready calories for work consumption and second to protect against low blood sugar, which in turn may be associated with feelings of marked fatigue.

The diet is not otherwise altered until the pre-competition meals which is consumed three hours before competition. This period of time allows for absorption and digestion but does not extend long enough to allow hunger or starvation to ensue.

Pre competition meals

pre-competition meals

In the digestion and metabolism of protein, there is a residue of acid which can only be excreted by the kidneys. Carbon dioxide, the acid of fat and carbohydrate, can be blown off via the lungs. During exercise, effective kidney function ceases, preventing egress of acid by this route.

The athlete who eats a large steak (protein) prior to competition invites the onset of acidosis with all its unpleasant manifestations. For traditional yet stupid reasons, athletes are encouraged to wolf down rare meat, eggs, and milk before competition, when, in fact, they should be eliminated.

What should a pre-competition meal have in it

The pre-competition meal should be easily digestible since the implications of competing “on a full stomach” are well known. Fat in any form slows stomach emptying. Unless food passes from the stomach into the small intestine, no appreciable absorption can occur. Anxiety alone is sufficient to slow the stomach emptying. Since most athletes experience “butterflies in the stomach,” this should not be aggravated by eating fats. Fats should be kept to an absolute minimum in the pre-event meal.

Carbohydrate is the most readily available and quantitatively significant source of calories in athletics. Although fats and fatty acids are utilized, carbohydrates are pre-eminent. Moreover, their final breakdown products of carbon dioxide and water are readily excreted via the lungs and skin. They thus do not contribute to an acid load, which can only be excreted by the (non functioning) kidneys. Sugar, potatoes, bread, cereals, and honey are sources of starch commonly used by athletes.

During exercise, perspiration may be huge. Marathon runners lose eight to ten quarts of sweat during a race. Laborers while working at the Boulder Dam construction lost up to ten to fourteen quarts per day. Adequate hydration prior to competition is essential. The harmful effects of sweating off a few pounds to make a weight limit are now well recognized. As to the liquids in the pre-event meal, these should be readily absorbable and low in fat content, hence the need to restrict milk. They should not cause laxation, hence the need to restrict juices, particularly prune juice. Usually two or three glasses of fluid with the pre-event meal ensures adequate hydration.

Salt and pre-competition Meals

Salt supplies are important. If no salt is taken, the dangers of heat stroke and heat exhaustion are more likely, especially in warm weather. A practical and effective way to give salt is in bouillon. One bouillon cube dissolved in a cup of water is excellent. Salt tablets should not be taken just prior to competition because they may be very irritating to the stomach-and more so if the stomach is “nerved up” before the event. Another glass or two of water can be taken one to one and a half hours before competition.

These are the basics for most people for pre-competition meals and I hope you have learned lots to get ready.

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Weight Loss Exercise

Yoga for Back Pain Research

Yoga for Back Pain Research came out this past week and the results were very interesting. According to the latest research, doing yoga daily is more effective in healing your chronic back pain than other conventional back pain treatments. There are also more side effects as a result of using the conventional treatments, such as painkillers and muscle relaxants.

Yoga for Back Pain Research

The researchers closely monitored 228 adults who suffer from acute and chronic back pain problems. They were separated into three groups with two groups attending daily yoga sessions and the remaining group doing different exercises for a few weeks.

At the end of the program they discovered that 50% the participants who attended yoga sessions felt much better compared with only 20% of the other group.

Yoga is More than Meditation

Yoga for Back Pain Research

Yoga for Back Pain Research

The Yoga for back Pain research forces us to look more deeply into what Yoga actually is. Yoga is not just a form of meditation as some people perceive it and the benefits are not just limited to strengthening muscles, improve flexibility and balance. Yoga is an extremely good therapy for relieving back pain, shorten recovery time, reduce swelling and increase blood circulation. Practising yoga daily will help improve your posture and keep your spine in proper alignment.

There are many forms and poses of yoga and not all can help your back condition. In fact some can even worsen it. It is best to attend classes under the guidance of certified yoga instructors as they can advise on what poses are suitable for you.

Back strengthening poses serve not only to strengthen your muscles around the spine, but also help to activate your kidneys and increase the energy in your body. Back releasing poses will help to reduce tension and muscle spasm and improve spinal mobility. These exercises will help to nourish your back muscles and muscle tissues, and are good for people suffering from lower back pain. Stretching other muscles in your body such as the hamstring and thigh will make them stronger and more flexible and lessen the amount of stress on your back. This will finally reduce the tension and relieve your back.

Easier Way to do Yoga

Performing poses on the floor are easier than standing poses as they require less strength and balance. One very important aspect of doing yoga is to learn how to breathe properly, especially when holding the poses. Choose poses with longer hold times (inhaling and exhaling) as they are easier to do.

When you master the art of deep and rhythmic breathing, your body will relax, freeing you of pain-inducing restrictions and eases proper circulation.

Do not eat at least one to two hours before you practise yoga and refrain from drinking too much water before the session.

You should practise yoga daily for an average of 30 minutes, depending on your schedule, objective and fitness level. It is better to practise more often with shorter duration than less often with longer duration as this will produce better result.

If you are seeking relief from back pain, yoga is certainly one of the best lower back pain exercises. Like all forms of exercises, do not push your body to the limits. If you still experience pain after doing yoga, stop and consult your doctor.

Back Pain Treatment is a blog full of interesting information on back pain problems, treatment options and prevention tips. Visit this site for current events and stories relating to back pain and share your thoughts. So now that we have this interesting Yoga for back pain research it is time for you to learn to do Yoga

  • Yoga for Back Pain Research


Yoga for Back Pain Research

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